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Mother Gets Baby Formula After 10 Weeks | Her Sons Would Have Faced Irreversible Brain Damage Due To The Shortage

Mother Gets Baby Formula After 10 Weeks | Her Sons Would Have Faced Irreversible Brain Damage Due To The Shortage

Her two sons have a metabolic disorder that requires a special medical-grade baby formula.

Alexa Beichler, a mother of three, experienced the severe effects of the countrywide baby formula scarcity for more than two months until her shipment of medical-grade formula was delivered to her home.

Beichler's kids, Jax, 7 months, and Taylor, 21 months, were born with a metabolic disorder known as classic phenylketonuria. According to Medline Plus, "Phenylketonuria (commonly known as PKU) is an inherited disorder that increases the levels of a substance called phenylalanine in the blood." Phenylalanine can accumulate in dangerous quantities in the body if PKU is left untreated, leading to intellectual impairment and other major health issues.



 

 

Beichler told PEOPLE last month that her kids could suffer irreversible brain damage if they didn't have access to their special medical-grade formula. She is also the mother of four-year-old Carson who doesn't have this condition. The boys must take the special formula, which is unavailable in grocery shops or pharmacies, due to their lifelong PKU diagnosis. The formula is part of a specific diet that restricts their daily protein intake to two grams for the rest of their lives.

As of Tuesday, Beichler said that her family started using the  formula after receiving a full shipment on June 16. The last full supply she received before the most recent delivery was on April 5. She said, "The boys are doing really good. Taylor was actually having a really tough time transitioning so it was a big, big thing that we got that shipment because Taylor was not doing well."

 



 

 

She added, "This formula is so important to him because it's all the daily vitamins and nutrients that he gets. It's very important that he drinks all of it or else these bad things can happen like brain damage and other issues." According to Beichler, the shipment from June 16 should keep her boys fed through the end of July. She said, "[The formula manufacturer plant] said to prepare for more delays and more issues because not only are they out of the stuff to make the formula, they're out of the foil packets."

"We're still living day to day and doing what we can, trying to save as much formula. It's still an ongoing thing and I can't push that enough."

Beichler can't help but be thankful for the "outpouring" of love and support she has received since telling the world about her situation, despite the fact that there are still a lot of uncertainties around her next formula shipments. "The most important part of this is what's happened from the PEOPLE story—we were reached out to by so many different people. Eleven minutes after the first article went live, we were reached out to by people in Belgium and different countries," she said. "The outpouring was so amazing, I cannot believe all the love that we got from everyone trying to help."

References:

https://people.com/parents/mom-whose-sons-faced-brain-damange-receives-medical-formula-exclusive/

https://medlineplus.gov/genetics/condition/phenylketonuria/

Representative Cover Image Source: Getty Images/Image Source